Welcome to the seventh day of Seven Hearts in Seven Days - if you are looking for more information on Congenital Heart Defects or how to get in on the giveaway - check out last Saturday's post. Be sure to come back tomorrow for the finale!
Today's post comes from Erin at Words from a Busy SAHM
I went in for my surgery early in the morning. When they delivered her. she was not breathing and she was not moving. I was so scared at that time. The nurses hurried up and started doing stuff to her. She didn’t even cry at all. After they got her breathing they rushed her down to NICU. I did get to kiss her on her head but that was it. The day after I was able to finally go down and see Olivia. I did hold her for a while.
The ambulance team that was taking her to the specialty hospital brought her up for me to see her. She looked so tiny in the clear carrier that they had her in. After a few hours of her leaving I was released to go down to be with her. We got into the room and there was at least 4 doctors in there with her and the genetic doctors. They did their own Echo and found that she had Hypo-plastic Aortic Arch. The genetic doctors was also doing their own tests and found out that she had Jacobsen Syndrome. It is not very common.
Olivia did very well in the hospital. She was not discharged until January 12th 2006 almost 4 weeks in the hospital. Today Olivia is 4 years old and she is doing very well. She has not had any surgeries. She is monitored every year be an EKG and an ECHO. She goes to school for special needs and has no restrictions. She does have Parachute Mirtal Valve and Mitral Valve Stenosis. Olivia is a very active girl. I have a website dedicated to her syndrome. http://www.jacobsenssyndromeawareness.com/
Everyday is just another day that she brightens up my life.